Donate Life Family Fun Run Privacy Statement
Last Updated: December 21, 2022
PLEASE READ THIS POLICY CAREFULLY TO UNDERSTAND HOW WE TREAT YOUR PERSONAL INFORMATION AS WELL AS YOUR CHOICES AND RIGHTS. IF YOU DO NOT AGREE WITH THE TERMS OF THIS POLICY, YOU SHOULD NOT ACCESS OR USE THE SITE.
THE SITE IS INTENDED FOR USERS LOCATED IN THE UNITED STATES, AND IT IS NOT INTENDED FOR USERS LOCATED IN OTHER COUNTRIES, INCLUDING THE EUROPEAN UNION AND THE EUROPEAN ECONOMIC AREA.
Infinite Legacy (also referred to herein as “we,” “us,” and “our”) is committed to protecting the privacy and security of the personal information we collect, use, share, and otherwise process as part of our business. We also believe in transparency, and we are committed to informing you about how we treat the data we collect and process.
WHAT PERSONAL INFORMATION DO WE COLLECT?
What Personal Information Do We Collect? We may collect the personal information described below:
Contact Information. When you visit our Site or contact us, we may collect your name, address, email address, and phone number.
Stories of Hope. If you share your story with us via the Site, in addition to your Contact Information, we will receive your story title, your status regarding a transplant and/or you or your family member’s donation story, the narrative information that you choose to share in your story, and your photograph.
Volunteer Registration. If you create an account as a prospective volunteer, we will collect your Contact Information, the username and password you create, and your social media usernames, date of birth, and preferred language. As a part of the registration, we will also ask you to provide information about your availability to volunteer, the types of events at which you would like to volunteer, your connection to donation and transplant, your employment status, your t-shirt size, your emergency contact information, your preferred hospital, and your COVID-19 vaccine status. You will also be required to sign various agreements and acknowledgments in order to be eligible to volunteer, and these will be presented to you for review.
Payment Information. If you make a donation online or purchase items from us, in addition to your Contact Information, we (or our third-party payment processor) will receive your PayPal username and transaction information.
Purchase Information. If you make a purchase from our Site, in addition to your Contact Information and your Payment Information, we will receive information about the products that you purchase and your shipping information.
Contact Aftercare Now. You can request to be contacted be our family services team via the Site, and we will receive your Contact Information as well as the reason for your request. A member of our team will respond by phone call or text message.
Job Applicant Information. If you apply for a job via the Site, we will collect your Contact Information, resume, cover letter, and information about your professional experience.
Communications and Inquiries. If you contact us, in addition to your Contact Information, we will receive any comments, content, questions, or other information that you choose to provide. For example, if you request memorial cards from us, in addition to your Contact Information, we will receive the information that you share regarding the donor and any words of remembrance. In addition, if you submit the hospital services feedback form, we will receive the information you provide regarding the relevant hospital, unit, and referral as well as any information you share about your experience with us. Also, if you complete our donor family feedback survey, in addition to your Contact Information, we will receive information about your loved one and your experience and interactions with us.
Sponsorship Request Form. If you submit a sponsorship request form, in addition to your Contact Information, we will request your organization’s name, a brief description of your organization and its mission, the organization’s tax ID number, the amount of the requested sponsorship, and information about the event (including the date, description, and number of expected attendees).
Event Registration. If you register for an event with us, we will collect your Contact Information and information about the event that you are attending.
Always Invite Request. If you are a donor family who would like to attend future Ceremony of Remembrance events, you may submit an Always Invite Request to be added to our “Always Invite” list. In addition to your Contact Information, we will also receive the name of the donor you are honoring.
Usage Data. We may automatically collect information from your browser or device, including the date and time of access; information about what pages you visit and how you navigate the Site; and your location, Internet Protocol (IP) address, device identifier, device type, operating system, and browser type.
Cookies and Similar Technologies
What are first and third-party cookies? A “cookie” is a small file created by a web server that can be stored on your device (if you allow) for use either during a particular browsing session (a “session” cookie) or a future browsing session (a “persistent” cookie). “Session” cookies are temporarily stored on your device and remain there until they expire at the end of your browsing session. “Persistent” cookies remain stored on your device until they expire or are deleted by you. Local shared objects (or “flash” cookies) are used to collect and store information about your preferences and navigation to, from, and on a website. First-party cookies are set by the website you are visiting, and they can only be read by that site. Third-party cookies are set by a party other than that website.
What are “similar technologies”? In addition to cookies, there are other data collection technologies, such as Internet tags, web beacons, pixels (clear gifs, pixel tags, and single-pixel gifs), and navigational data collection (log files, server logs, etc.) that can be used to collect data as you navigate through and interact with a website. For example, web beacons are tiny graphics with unique identifiers that are used to understand browsing activity. UTM codes are strings that can appear in a URL when you move from one web page or website to another. The string can represent information about your browsing, such as which advertisement, page, or publisher sent you to the receiving website.
Facebook Connect. Facebook Connect gives you the option to post information about your activities to your Facebook profile page to share with others within your network by using a single sign-in service to authenticate your identity. You may learn more about Facebook’s policies by visiting https://www.facebook.com/policy.php, and you can also find instructions for opting out of receiving advertisements via that page.
Other third-party technologies. Some third parties may use data collection technologies to collect information about you when you browse the Internet. We do not control these third parties’ technologies or how they may be used. If you have questions about targeted content, you should contact the responsible party directly or consult their privacy policies.
Choices about cookies and similar technologies. Most web browsers are set by default to accept cookies. If you do not wish to receive cookies, you may set your browser to refuse all or some types of cookies or to alert you when cookies are being stored. These settings may affect your enjoyment of the Site’s functionality. Adjusting the cookie settings may not fully delete all of the cookies that have already been created. To delete them, you should review your web browser settings after you have changed your cookie settings. The links below provide additional information about how to disable cookies or manage the cookie settings:
Google Chrome: https://support.google.com/chrome/answer/95647?hl=en
For more information about how to modify your browser settings to block or filter cookies, visit http://www.aboutcookies.org/. You may learn more about internet advertising practices and related consumer resources at https://youradchoices.com/control, https://thenai.org/about-online-advertising/faq, and http://www.networkadvertising.org/choices.
HOW DO WE USE AND SHARE YOUR PERSONAL INFORMATION?
How Do We Use Your Personal Information? We may use your personal information for the purposes described below:
Operate and improve our operations, services, and the Site
Provide you with services, content, and functionality
Improve our services and develop new services
Honor our terms of service and contracts
Manage our relationship with you and your use of the Site
Communicate with you and respond to your feedback, requests, questions, or inquiries
Register you for our email list and send you periodic messages
Engage with you on social media
Enable you to share comments, questions, and answers
Improve our marketing efforts, including by providing more tailored advertising
Promote our services and contact you about other services
Administer a contest, promotion, or survey
Assess the success of marketing and advertising campaigns
Ensure the privacy and security of our Site and services
Maintain our databases and back-ups, including records of our communications with you
Process payments and donations
Detect fraud and prevent loss
Support and improve the Site, including evaluations of functionality and features
Analyze use of the Site and our services and prepare aggregate traffic information
Recognize your device and remember your preferences and interactions
Provide you with a more personal and interactive experience on the Site
Determine and track user interests, trends, needs, and preferences
General operational support, including procurement, financial and fiscal management, risk and compliance management, and reporting
Facilitate corporate mergers, acquisitions, reorganizations, dissolutions, or other transactions
Obtain and maintain insurance coverage and professional advice
Accomplish any other purpose (a) that is related or ancillary to any of the purposes described in this Policy, (b) that is described to you when you provide the information or to which you consent, or (c) for which we have a legal basis under law
Comply with federal, state, or local laws
Comply with a civil, governmental, or regulatory inquiry, order, subpoena, summons, or process
Cooperate with law enforcement agencies
Exercise or defend legal rights or claims
Create, use, retain, or disclose de-identified or aggregated data
How Do We Share Your Personal Information? We may share your personal information for the purposes described below:
Stories of Hope. If you decide to share your story with us via the Site, we will display on the Site your story and the information and photo that you share with us. The information will be visible to the public.
Affiliates. We may share your information with our subsidiaries and affiliates and with their respective officers, directors, employees, and agents.
Corporate Transactions. We may disclose your information in the event of a merger, divestiture, restructuring, reorganization, dissolution, or other sale or transfer of our organization or some or all of our assets. If we are acquired by or merged with another entity, your information may be transferred to the new owners.
Legal Obligations. We may disclose information in response to subpoenas, warrants, court orders or other legal process, or to comply with relevant laws. We may also share information in order to establish or exercise our legal rights or claims; to defend against a legal claim; and to investigate, prevent, or take action regarding possible illegal activities, suspected fraud, safety of person or property, or a violation of our contracts or terms.
Service Providers and Advisors. We may share information with our service providers and professional advisors (accountants, attorneys, etc.) that need access to information to provide services on our behalf.
Third Parties. We may provide information about you to third parties that offer products and services specifically requested by you. We may also ask if you would like for us to share your information with other third parties, but will only do so if you consent.
De-Identified and Aggregated Data. We may share with third parties aggregated information and anonymous or de-identified data that does not identify any specific individual, such as groupings of demographic data or user preferences.
HOW LONG DO WE KEEP YOUR INFORMATION?
We will keep your information for as long as is necessary to fulfill the purposes for which it was collected, to comply with our business requirements and legal obligations, to resolve disputes, to protect our assets, to operate our business, and to enforce our agreements.
We may delete your information if we believe it is incomplete, inaccurate, or that our continued storage of it is contrary to our objectives or legal obligations. When we delete data, it will be removed from our active servers and databases, but it may remain in our archives when it is not practical or possible to delete it.
We may retain and use anonymous, de-identified, or aggregated information for as long as is permitted under applicable law.
HOW DO WE PROTECT YOUR INFORMATION?
We have adopted security measures that are designed to protect the personal information under our control. From time to time, we review our security procedures and consider new technologies and methods.
But, no security system is perfect, and no data transmission is 100% secure. Although we strive to protect personal information, we cannot guarantee or warrant the security of any information transmitted to or from the Site. Your use of the Site is at your own risk. We cannot guarantee that your data will remain secure in all circumstances.
If a data breach compromises your personal information, we will notify you and any applicable regulator when we are required to do so by applicable law.
YOUR RIGHTS AND CHOICES
Please use the “Contact Us” details provided at the end of this Policy to exercise your rights and choices under this Policy. We honor requests when we are required to do so under applicable law.
Email Preferences. We may send you emails about our Site and services. If you do not want to continue receiving emails from us, you may opt-out by clicking the “unsubscribe” button at the bottom of our emails or by contacting us at firstname.lastname@example.org. Please provide your name and contact information in your request, and we will respond to your request in accordance with applicable law.
Update Your Information. Our goal is to keep your information accurate, current, and complete. If any of the information you have provided to us changes, please let us know via the “Contact Us” details at the end of this Policy. We are not responsible for any losses arising from any inaccurate, inauthentic, deficient, or incomplete personal data that you provide to us.
Complaints. If you believe your rights relating to your personal information have been violated, please contact us via the “Contact Us” details provided at the end of this Policy.
THIRD PARTY SITES AND SERVICES
This Policy only applies to the Site. It does not apply to any websites, applications, or services from third parties.
The Site may include links to, or content from, third parties. These links are to external resources and third parties that have their own privacy policies. It may not always be clear which links are to external, third-party resources. If you click on a third-party link, you will be redirected away from the Site. You can check the URL to confirm whether you have left the Site.
We cannot and do not (1) guarantee the privacy or security practices of third parties or any content provided by third parties; (2) control third parties’ collection or use or your information; or (3) endorse any third-party information, products, services, applications, or websites.
CHILDREN’S ONLINE PRIVACY PROTECTION ACT
We are a nonprofit organization, and our Site and services are not directed to children under the age of 13, nor is information knowingly collected from children under the age of 13. No one under the age of 13 may access, browse, or use the Site or provide any information to us. If we learn that we have collected or received personal information from a child under the age of 13 without a parent’s or legal guardian’s consent, we will take steps to stop collecting that information and delete it. If you believe we have any received information from a child under the age of 13, please contact us using the “Contact Us” details provided below.
For more information about Children’s Online Privacy Protection Act (COPPA), please visit the Federal Trade Commission’s website at: https://www.ftc.gov/enforcement/rules/rulemaking-regulatory-reform-proceedings/childrens-online-privacy-protection-rule.
UPDATES AND CHANGES
We may update this Policy from time to time. If we change this Policy, we will post the revised version on our Site. Any changes, updates, and modifications will be effective immediately upon posting. If we make material changes, we may also notify you through a notice on the Site’s homepage and/or send you an email regarding the updates.
You should read this Policy carefully before using the Site, and you should review it from time to time so that you are aware of its current terms. Your continued use of the Site after the “Last Updated” date will constitute your acceptance of and agreement to any changes and to our collection, use, and sharing of your information according to the then-current Policy. If you do not agree with this Policy, you should not use the Site.
For more information or if you have questions about this Policy, you may contact us using the information below:
Mail: Infinite Legacy
1730 Twin Springs Road, Suite 200
Baltimore, Maryland 21227